Monday, September 23, 2019
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Experts laud Karnataka govt’s timely initiatives for rare diseases patients

Karnataka government has been providing treatment to adult-onset Pompe patients and Gaucher patients since 2016. Experts feel other governments must learn from this example..................

Pompe patients in Kerala awaiting treatment despite judicial intervention

Despite the judicial intervention, the government has not initiated the interim treatment and this has led to the funds being lapsed, leaving the patients in dismay.................

Rare disease patients waiting for an immediate interim support from govt

At an event held in Delhi, the rare disease patients and families raised their collective voice to seek hope for a better treatment from the central government................

Precision medicine can offer hope to rare disease patients

The rare diseases have not received the attention they deserved within the health policy initiatives in India, feels Prasanna Kumar B Shirol.....

Court order gives a ray of hope for treatment of lysosomal...

Six patients suffering from ultra- rare Lysosomal Storage Disorders (LSDs) got interim relief through Delhi high court...