Wednesday, December 7, 2022
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Experts laud Karnataka govt’s timely initiatives for rare diseases patients

Karnataka government has been providing treatment to adult-onset Pompe patients and Gaucher patients since 2016. Experts feel other governments must learn from this example..................

Clinical research will help us find more effective treatment for rare...

The Indian Society for Clinical Research (ISCR) is of the view that more research in required in India to address the unique needs of rare disease patients......

Precision medicine can offer hope to rare disease patients

The rare diseases have not received the attention they deserved within the health policy initiatives in India, feels Prasanna Kumar B Shirol.....

Patients appeal govt to ensure free treatment for the rare diseases

Appeal to the government to provide free treatment for patients with Lysosomal Storage Disorders (LSDs)....