Saturday, May 8, 2021
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National policy for rare diseases fails to meet expectations: ORDI

As per Organization for Rare Diseases India (ORDI), the National Policy for Rare Diseases, 2021 abridges the ‘right to health’ by ignoring the true needs of rare disease community in India......................

Racefor7: Over 4000 participants virtually unite to raise awareness for rare...

In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases India (ORDI) through the event hopes to create opportunities for more voices from the rare disease community to be heard across all stakeholder.......................

ORDI to hold Racefor7 to raise awareness & advocacy for rare...

The fifth edition of the vent by ORDI will be on a much larger scale than before with events scheduled in 20 India cities..................

Need to build global confidence & trust in clinical research in...

ISCR Conference concludes on note of optimism and hope in Mumbai with stakeholders agreeing on the need to take proactive approach to quality to mitigate negative perceptions....