Sunday, July 5, 2020
wellness India Expo
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ORDI to hold Racefor7 to raise awareness & advocacy for rare...

The fifth edition of the vent by ORDI will be on a much larger scale than before with events scheduled in 20 India cities..................

Researchers discover genetic mutation causing rare colorectal disorder in Gujarati family

This is a first-of-its-kind genetic study in India on a rare inherited condition involving a patient diagnosed with Familial Adenomatous Polyposis (FAP) and 25 members of his immediate and extended family................

National policy for rare genetic diseases formulated

On the whole, govt says that the policy seeks to strike a balance between the interest of patients of Rare Diseases and health system sustainability.........

Father of a rare disease child patient appeals for govt’s attention

New Delhi based Praveen Tyagi's son Garvit was detected with rare genetic disorder, Spinal Muscular Atrophy that has only one treatment option that cures the disease by only 40 percent. He has sought health ministry's help...