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Takeda & UNGCNI joint initiative works towards strengthening rare disease treatment...

Orchestrating collaborative actions to generate rare disease crowdfunding

MedGenome’s novel software to detect genetic variants for rare diseases &...

The software claims to accurately predict and rank a pathogenic variant in 90% of rare diseases cases with no or minimum manual intervention

Dr. Sheela Nampoothiri becomes co-chair of ICMR’s Rare Diseases National Consortium’s...

Dr. Ratna Puri from Sir Ganga Ram Hospital, Delhi is the Chairperson of the expert committee

Takeda receives Arogaya CIBioD Innovation & Enterprise Leadership Award

The company has recently pioneered the 'Blueprint for rare diseases' initiative designed for multi-stakeholder engagement and collaboration focused on rare diseases in India. It has helped create various innovative technology-based solutions..............................

Govt launches national crowdfunding portal for rare disease patients

The initiative has been launched in accordance with the mandate of the National Policy for Rare Diseases 2021.....................

National policy for rare diseases fails to meet expectations: ORDI

As per Organization for Rare Diseases India (ORDI), the National Policy for Rare Diseases, 2021 abridges the ‘right to health’ by ignoring the true needs of rare disease community in India......................

From delayed diagnosis to lack of funds: India’s shaky rare disease...

India does not have a healthcare policy for Rare Diseases in place, and whatever little benefits exist are only applicable for BPL Families, writes, Prasanna Shirol, Founder Director, ORDI.....................

Racefor7: Over 4000 participants virtually unite to raise awareness for rare...

In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases India (ORDI) through the event hopes to create opportunities for more voices from the rare disease community to be heard across all stakeholder.......................

ORDI to hold Racefor7 to raise awareness & advocacy for rare...

The fifth edition of the vent by ORDI will be on a much larger scale than before with events scheduled in 20 India cities..................

Landmark judgement brings hope for a rare disease patient in Delhi

Subsequent to a petition by the rare disease patient, Dharminder Singh, the Delhi High Court passed a groundbreaking judgment in which ESIC Hospital was asked to provide free treatment to him considering his dependency...................